The Angelman Syndrome Foundation (ASF) will host 43 Walks to raise awareness and funds nationwide, with a local Walk in St. Cloud. More than 10,000 people will be walking for a cure for Angelman Syndrome nationwide. The Angelman Syndrome Foundation Walk will be held Saturday, May 19, 2018 at the St. Cloud Lakefront, 1104 Lakeshore Blvd St Cloud, FL 34769. The Walk is open to the public with the Check-in at 9:00am and the Walk beginning at 10:00am.
The ASF is a national nonprofit dedicated to improving the lives of individuals with Angelman syndrome and their families through education and information, research and support. The ASF National Walk raises funds for research aimed at finding treatments and a cure for Angelman syndrome, and to provide direct support to individuals with Angelman syndrome and their families or caregivers. The ASF has funded 101 research grants totaling $9.5 million. For more information about the ASF, visit www.angelman.org.
“As a parent of a child with Angelman syndrome, I know first-hand the beautiful moments and the immense struggles of raising an individual with this disorder—and I want to do everything I can to help other families who are experiencing life with Angelman syndrome,” said Lizzie Sordia. “I am looking forward to rallying the community in support of the Angelman Syndrome Foundation, which has made a difference in my life and works to support everyone impacted by this disorder.”
Angelman syndrome is caused by the loss of function of a particular gene during fetal development, resulting in severe neurological impairment present at birth and lasting for a lifetime. Symptoms vary and include severe developmental delays, speech impairments, seizures, walking and balance disorders, and frequent laughter and excitability. While there is no definitive count, it is estimated that Angelman syndrome occurs in one in every 15,000 live births.